(from the Child Care & Early Education Research Connections website)
The term administrative data refers to information about individual children, families, and/or providers of early care and education and other family benefits that is collected and maintained as part of the operation of government programs.The resources on the website were selected from a collection of resources about acquiring, using, managing, linking, and analyzing administrative data in early childhood or related fields. The current resources were selected because they:
- Highlight advantages and disadvantages to using administrative data;
- Detail steps or procedures about how to use administrative data;
- Provide state examples about administrative data use; or
- Are tools or toolkits that house information about administrative data.
Access the full Child Care and Early Education Research Connections site.
- Roadmap for Foster Care and K–12 Data Linkages – Data Quality Campaign
- Using Administrative Data for Randomized Evaluations – J-PAL North America Guide
- Data Policy Toolkit – Implementing the State Blueprint – Workforce Data Quality Campaign
- Integrating Early Childhood Data: What Legislators Need to Know – National Conference of State Legislatures, November 2015
Toolkit for Communities Using Health Data: How to collect, use, protect, and share data responsibly – U.S. Dept. of HHS, Centers for Disease Control and Prevention, National Center for Health Statistics, May 2015
- Administrative Data for Research and Improvement – U.S. Dept. of HHS, Office of Policy Research and Evaluation, Administration for Children & Families
Memorandum of Understanding (MOU)
The MOU is the foundational agreement among the IDS contributors and sets forth the core features of the IDS structure as well as the respective legal rights and responsibilities of each party within the IDS. A good MOU will codify both the legal requirements and the operational structure of the IDS. An MOU should be written in plain, simple language so that anyone involved in the IDS (including agency leadership, operational staff, the public) can understand its terms.
For more on MOUs, and to see samples from AISP Network sites, see our Expert Panel Report, “Legal Issues for IDS Use: Finding a Way Forward.”
Data Use Agreement (DUA)
A DUA is a legal binding agreement between a department and an external entity (e.g., contractor, private industry, academic institution, other Federal government agency, or state agency), when an external entity requests the use of personal identifiable data that is covered by a legal authority. IDS in the AISP Network generally use a master MOU to govern their policies and procedures, and require individual approval and a DUA (or DUL) for each research project.
- NNIP’s Lessons on Local Data Sharing
- HHS: Centers for Medicare and Medicaid Services – Data Use Agreement
- North Carolina Department of Health and Human Services data use agreement
- Student Data Privacy Legislation, 2015
- FERPA Notice of Proposed Rulemaking, 2011
- Protecting Student Records and Facilitation Education Research, National Academies Press, 2008
- Protecting Student Privacy while Creating and Using Integrated Data Systems: Requirements and Best Practices PPT – Presentation from Michael Hawes, Statistical Privacy Advisor, DOE. AISP Developing Sites Conference, University of Pennsylvania: December 2014
- U.S. Departments of Labor and Education Issue Joint Data Sharing Guidance to Facilitate WIOA Performance Reporting and Evaluation, 2016
- Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, National Academies Press, 2009
- HIPPA PPT: National Forum on Youth Violence Presentation: HIPAA Privacy Rule Considerations. Presented by Iliana L. Peters, JD, LLM. HHS Office for Civil Rights: November 1, 2011
- Administrative Data Research Network (ADRN): Beaches policy and procedures
- Connecting the Dots: The Promise of Integrated Data Systems for Policy Analysis and Systems Reform
- 2016 White House Budget: Chapter 7 – Building Evidence with Administrative Data
- OMB Memorandum on Integrated Data, May 2012
- AISP Project Brief, 2012
- Challenges in Administrative Data Linkage for Research
If you require more specific DUA/MOU examples, please contact us at email@example.com.