Mature, fully-functioning IDS sites need an infrastructure that promotes:

  • Shared governance processes
  • Legal compliance and data security
  • Data management and analytics
  • Political and economic sustainability

IDS that are fully-functioning:

  • Integrate data from three or more agencies on an ongoing basis
  • Are governed by a master Memorandum of Understanding (MOU) between data-holding agencies that establishes a commitment to data sharing in compliance with federal mandates, such as the Family Educational Rights and Privacy Act (FERPA), the Health Insurance Portability and Accountability Act (HIPAA) and the Privacy Act, and sets policies and procedures for decision-making on everything from project approval to review and dissemination;
  • Utilize separate Data Use Licenses (DUL) to authorize and set the terms of individual research projects;
  • Create outlined procedures for data retrieval, record linkage, cleaning, sharing, and protecting data;
  • Employ strategies for securing executive buy-in to sustain their efforts across different administrations and budget cycles